There was a time when I registered to further my education, but I later dropped out because I struggled to keep up with studies, work, and life in general. The pressure took a toll on my mental health, and I found it difficult to cope. — Nnimo, Soweto
Welcome to "Unveiling the Lived Experiences of Endometriosis Warriors: Endo Diaries," a new blog series where I dive into the lives of other endometriosis warriors. In this series, we'll learn firsthand from individuals who have battled the challenges of this debilitating disease, sharing their triumphs, struggles, and everything in between.
I'm immensely grateful to each warrior and friend, who has bravely stepped forward to share their journey with us. Your willingness to open up about your experiences not only sheds light on the realities of living with endometriosis but also offers hope and solidarity to others facing similar battles.
Meet Nnimo from Soweto, South Africa.
1. Can you please introduce yourself and tell us a bit about your background and what you do?
I'm a 40-year-old woman, a Stage 2 endo warrior from Soweto, Johannesburg, working as a Metro police officer.
2. When were you diagnosed with endometriosis, and what was the journey to diagnosis like for you?
In 2013, I went to consult with a GP and he said that I had an ovarian cyst. He then referred me to a gynaecologist, who dismissed this even after a laparoscopy. It was later confirmed by a second gynaecologist months later that I indeed had an ovarian cyst and endometriosis.
3. How has living with endometriosis impacted your daily life, both physically and emotionally?
It's been very hard, as I constantly feel very drained, so I'm no longer as active as I used to be. It has also made me anti-social because I'm tired of being a burden to those around me.
4. How do you balance managing your symptoms with work or other responsibilities?
Sometimes it's very hard to balance life at large due to pains. However, I have learned some survival mechanisms that work for me. I've also discovered the importance of pacing myself and not pushing too hard.
5. Have you undergone excision surgery for endometriosis? If so, how has life been
post-surgery?
Even though there have been challenges, life after excision surgery has been better for me. I've experienced improved movement and reduced pain levels. That is, until the endometriosis returns or ovarian cysts resurface, causing the list of symptoms to come back.
6. Have you faced any challenges in pursuing your education or career goals due to
endometriosis? If so, how have you addressed them?
Yes, I have faced challenges in pursuing my education and career goals due to endometriosis. There was a time when I registered to further my education, but I later dropped out because I struggled to keep up with studies, work, and life in general. The pressure took a toll on my mental health, and I found it difficult to cope. To address this, I receive counselling to help me manage my illness and get through life's challenges.
7. Can you describe a particularly challenging moment in your journey with endometriosis and how you overcame it?
Facing fertility issues has been a big challenge. I experienced a miscarriage and an ectopic pregnancy. Both pregnancies came as a shock to me because I didn't realise I was pregnant until I ended up in the emergency room. Overcoming these experiences has been an ongoing process, and I can't say that I have fully overcome them. But, receiving counselling has been helpful.
8. How do you prioritise self-care while managing the demands of daily life with
endometriosis?
It's important for me to listen to my body and rest when needed. And because I understand the importance of not pushing my body too much, I avoid doing strenuous activities that could make my symptoms worse.
9. Can you share any strategies for managing pain and discomfort during menstruation or throughout the menstrual cycle?
First, I make sure that I dress warmly and in loose clothing to minimise discomfort. I drink lots of water, preferably at room temperature or warm, avoiding icy or cold drinks, especially during my periods or when I'm experiencing pain. Also, I always keep my pain medication with me wherever I go. Rest is also essential, so I try to rest as much as possible to allow my body to regain strength.
10. How do you stay informed about new research or treatment options for
endometriosis?
I rely quite a lot on information shared by other endo warriors, because I've noticed that what works for me may not work for someone else with endometriosis, and vice versa. By staying connected with others who share similar experiences, I learn a lot.
Nnimo's journey with endometriosis sheds light on the challenges faced by many warriors battling this condition. Despite enduring physical and emotional strain, she persists as a dedicated Metro police officer, showing remarkable resilience in the face of adversity.
In concluding her interview, let's take a moment to think: How can we better support individuals like Nnimo in our communities? Whether you're a fellow endo warrior, a caregiver, or simply someone seeking to make a difference? Are you willing to commit to raising awareness, fostering understanding, and advocating for improved care and support systems?
I'd love to hear from you! How did you find this journey shared by our brave warrior and what are you going to do after gaining insight into her life? Leave your thoughts, words of encouragement, and solidarity in the comments below. Your support means the world to us and to the featured warrior.
Remember, if you're an endo warrior with a story to share or know someone who does, don't hesitate to reach out to me. Let's continue spreading awareness, advocating for understanding, and offering strength to one another as we navigate life with endometriosis.
Signed
#EndoWarriorH and Nnimo
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